Tips for getting an affordable Epi-pen

Food allergies are scary, exhausting, and difficult to manage.  From the first reaction, the doctors’ appointments and testing, the food-purge, and the education and advocation of others, there are so many bases you have to cover, and so many discussions around each.  However, people often forget to mention the costs.

When I worked in a Medication Assistance program, we often used a pharmacy resource call RXOutreach that sold expensive medications to patients who were no more than FPL.  Unfortunately, looking now they are charging $200 for a pack of two as well.

Those who don’t have insurance and are no more than 200% of the FPL are eligible for Mylan’s Prescription Assistance Program (PAP); however, the paperwork required and turnaround time for processing could be 2 months or more.  The application has to be printed and mailed in with financial documentation, proof of no insurance, and a prescription from your doctor.  The application can be printed here: mylan-epipen-frm

In one of my online support groups, citizens from Canada have suggested having your doctor send in your script to a Canadian pharmacy and have it mailed to you.  The cost would then be between $5 and $20.  This could take a month to receive.  My only concerns with this is knowing whether or not the pharmacy you use is legit and the fact they are not FDA monitored/approved.

If you have insurance, do not fear; there is still an option for you. Mylan also offers a My EpiPen Savings Card, boasting a $0 copay for 6 pens for those with insurance.   This, of course, comes with an asterisk.  The card only covers $300, so if your insurance still expects you to pay $300, then that is your responsibility.  Lauren Reiniger has a blog post about her own struggles with the cost of Epi-pens despite the fact that she has insurance: “The EpiPen Might Save My Life, But Not Before it Breaks My Bank“.

Unfortunately, there are those who cannot wait for a prescription from Canada or the drug company, those who aren’t eligible for prescription savings, and those with no money, so what choice do they have?  Is it fair that they should take the chance, risk their life?  The issue of food allergies already has so many added costs, it doesn’t make sense that this one life saving drug should be so inaccessible to those who really need it.

~Lacey

*Permission granted by Lauren Reiniger to mention/link to the post “The EpiPen Might Save My Life, But Not Before it Breaks My Bank“.

Advertisements

10 phrases allergy moms “love” to hear

  1. How allergic is your child?  When I tell someone my child has a food allergy, I’m telling them so that my child can avoid the allergen.  It doesn’t matter “how” allergic he is.  He doesn’t need the food, and we don’t need the agony of an allergic reaction.
  2. Is he really allergic or do you just not want him to have sweets? Of course I don’t want to constantly shove sweets down my child’s throat, but just because he can’t have certain foods does not mean I don’t let him have sweets.  Besides, why would you ask a mother (whether or not she has a child with food allergies) if you can give her child sweets?  Why can’t you offer my child an apple or even better a non-food item like stickers?
  3. I feel bad that he can’t have the same food as other kids.  I don’t want him to feel left out.  Most moms of children with food allergies come prepared with alternative options for their children.  While the children may feel a little left out from not getting to eat certain foods it is far better than the alternative of them eating the foods and having a reaction.
  4. Ugh…my life is so inconvenienced by your child’s food allergy.  Why do daycares, schools, airplanes and public buildings have to be peanut free?  First, if you seriously can’t wait until you get home to eat your peanut items, then maybe you have a bit of an issue?  Second, the severity of some allergies like peanuts differ from person to person.  Some people react just by touching an item that someone who had peanuts earlier touched.  It’s like with the flu.  If you have the flu virus you shouldn’t be bringing it out into public where it can hurt others.  Just keep your peanuts and your flu at home and to yourself.
  5. How long has it been since your child has tried this food? Maybe he’s built up a tolerance.  Yes, some people may grow out of their food allergies, but some of them may get worse.  Currently, there is no way to know either way.   There are some research efforts underway to see if there is a cure for food allergies.  No, we will not test his tolerance right now in a non-medical environment without his doctor’s consent just because you want to see if he reacts.  I can tell you that I am probably losing my tolerance for you.
  6. You must have eaten too much of that food during your pregnancy or while you were breastfeeding! You must be ignorant. Thank you for blaming me for my child’s medical condition though. Bless your heart. Do your own research and know that we blame ourselves enough for our children’s reactions without others trying to blame us too.
  7. Giving them a little bite won’t hurt. Right, and neither will letting them hold a rattlesnake. To allergy moms those two things are equal. Both could kill our child. Let me say that again to make it clear: ONE BITE COULD KILL MY CHILD. I’m not willing to take that chance. You shouldn’t be either. Killing people is frowned upon last time I checked.
  8. Oh, they’ll grow out of it. We actually want this. We desperately want our child to grow out of their food allergies. For them and for us. Unfortunately we don’t know if that will happen. Neither does my child’s allergist. I’m so glad you know though.
  9. It was processed in a plant/on a conveyor belt/on a counter top with the allergen, but it doesn’t have the allergen in it.  It should be safe. If it wasn’t potentially dangerous, then why do the products have to tell you they were processed near the allergen?  What if your favorite food item said processed by someone who had the flu or TB?  Would you feel comfortable chancing contamination?
  10. This one we will never hear said to our face. We’ve heard others say it about other allergy moms when they don’t realize we are listening or don’t realize we are also allergy moms. They’re just doing it for attention, I doubt their child even HAS a food allergy. Don’t be this person. This person is not a nice person to be. Please know that we are not seeking attention. Most of us HATE having to ask what ingredients are in everything when we are at a restaurant, a person’s house, on vacation, etc. I don’t like inconveniencing people. I hate it. I’m a southern girl to my core and I love making people feel at ease. I’m way out of my comfort zone when I have to seek people out to ask questions. I will do it for my child’s safety EVERY SINGLE TIME no matter how uncomfortable it makes me. I can assure you if I could take it away from them I would in a heartbeat.

This post is not intended for people who genuinely care about our children’s safety. If you are asking us questions that are intended to really help our child or if you are wanting to know details so that you can make them or give them a safe treat we welcome that. We always know your intentions as soon as you speak though. We can tell when you are a caring person and when you’re just trying to be a busybody or a tush.

~Hope & Lacey~

image

 

Before and After

Food allergies are life altering.  I should know as I developed an allergy to tree nuts as a teenager.  I have had many types of reactions from rashes/hives, upset stomach, swollen body parts, and the dreaded anaphylaxis requiring epi-pen injection, an ambulance ride, and a visit to the ER.  This post isn’t about my allergies, though.  It is about my son’s.

I only mention my own brief history to point out that this wasn’t always the norm.  Just like with my son DR, we had a period where food allergies did not affect us, were non-existent.

I hated to cook, and my husband, Justin, worked long sporadic hours, so it was easy to just order out:  our options only limited by who was open or willing to deliver.  I complained when we couldn’t agree on food or when an item I wanted was out.

Our diets were that of the typical American.  I never looked at fat, triglyceride, sugar, or caloric values.  Ingredients (other than my tree-nut avoidance) didn’t matter as long as we enjoyed the flavor.  We did try to adhere to a healthy diet for DR, attempting to avoid sugary foods and things that could rot his teeth or lead to obesity.  Grandparents would call us uptight for limiting him to only three cookies or bags of gummies.

Holidays and family get-togethers were plagued with vast amounts of foods. Christmas was my favorite time of year.   From Thanksgiving to New Year’s Day, we ate until we were sick.  My grandmother’s holiday baking was beyond compare.  Homemade cheesecakes, reese cups, cookies, brownies, fudge, and puff balls (different types of snack mixes dipped in melted chocolate, caramel, and peanut butter.  She would call me weeks in advance to ask what my heart desired and would spend hours baking.

I look back on all of this now with mixed emotions: sadness, frustration, acceptance, relief…the list goes on.  Our life is completely different, our food choices carefully examined and deliberated.  We eat out very little and cook much more.  Processed foods are a thing of the past, and fresh ingredients line our cabinets and refrigerator.  Holidays are a nightmare, and I am now a baker.

~ Lacey